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DTSTART;TZID=America/Halifax:20240508T090000
DTEND;TZID=America/Halifax:20240508T143000
DTSTAMP:20260422T010514
CREATED:20240319T091036Z
LAST-MODIFIED:20240319T091036Z
UID:5904-1715158800-1715178600@remedi4all.org
SUMMARY:Clinical Pharmacology Guidances Advancing Drug Development and Regulatory Assessment
DESCRIPTION:ABOUT THIS EVENT\nThis public workshop will be hosted by the FDA Office of Clinical Pharmacology (OCP) and the University of Maryland Center of Excellence in Regulatory Science and Innovation (M-CERSI). The purpose of this workshop is to serve as a mechanism to engage with the public to share information on existing clinical pharmacology guidances and identify emerging scientific topics that might benefit from the development of scientific research and recommendations. \nBACKGROUND\nAt every step of drug development\, clinical pharmacology is applied to generate\, evaluate\, and use knowledge of drug disposition\, pharmacology\, and disease biology to progressively reduce regulatory uncertainty and inform public health decision-making.   Clinical pharmacology principles form the basis of dosage selection and optimisation and promote therapeutic individualisation by translating the knowledge of patient diversity into clinical recommendations for safe and effective use of medications.   Therefore\, having clear\, pragmatic\, and contemporary scientific recommendations to inform drug development and regulatory assessment is critical for the successful and efficient development of therapeutics that protect and promote public health. Developing new or revising existing guidance documents\, especially in the broad field of clinical pharmacology\, requires a unique and integrated approach centered around multistakeholder partnerships. \nWORKSHOP GOALS\n\n\nProvide an overview of scientific recommendations pertaining to clinical pharmacology applications during drug development and regulatory assessment. \n\n\nDiscuss the current scientific challenges and gaps in applying clinical pharmacology principles during drug development. \n\n\nIdentify potential opportunities and priorities for regulatory research and scientific guidance development from a clinical pharmacology perspective. \n\n\nAGENDA\nClick here to see the full agenda. \nREGISTRATION\nRegistration is free.  All interested parties are encouraged to register early. Please click here to register. \n\nClick here to learn more.
URL:https://remedi4all.org/event/clinical-pharmacology-guidances-advancing-drug-development-and-regulatory-assessment/
LOCATION:Online & in-person (Maryland\, United States)\, MD\, United States
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BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20240613T083000
DTEND;TZID=Europe/Amsterdam:20240613T180000
DTSTAMP:20260422T010514
CREATED:20240321T143124Z
LAST-MODIFIED:20240524T124322Z
UID:5924-1718267400-1718301600@remedi4all.org
SUMMARY:2nd MULTI-STAKEHOLDER MEETING - Ensuring patient centricity in Osteogenesis Imperfecta research
DESCRIPTION:REMEDi4ALL is hosting our 2nd Multi-stakeholder Meeting (MS) – Ensuring patient centricity in Osteogenesis Imperfecta (OI) research.\n  \nJoin the MSM\nREMEDi4ALL invites all stakeholders in the OI research community to join us for a day of learning\, discussion\, and inspiration. \nWe welcome clinicians\, academics\, patients and patient representatives\, pharmaceutical companies\, regulators\, payers\, health economists and all interested in OI and Rare Bone Diseases research. Together\, we will discuss and develop patient centric approaches to research and medicines development for OI. \nOur MSM will: \n\nShare information and advance learning\, in a pre-competitive and cooperative setting\nDevelop constructive dialogue between all stakeholders\nFacilitate collaboration and knowledge exchange\nIdentify current hurdles and propose solutions to ensure patient centricity in OI research\nPublish and disseminate the meeting outcomes to a broader community\n\n The Power of Patients\nThe patient’s voice is at the heart of this meeting. The OI community and the REMEDi4ALL Patient Advocacy Group have played integral roles in shaping the content and format of this event. \nWe wanted to ensure that the patients’ perspectives\, experiences\, and preferences guide our discussions and are at the forefront of OI research and therapeutic development. Over the day\, you will hear from numerous patients\, patients representative and advocates. They will: \n\nShare their personal journeys of living with OI\, providing insights into the day-to-day challenges they face\, as well as the triumphs and setbacks they encounter.\nHighlight unmet medical needs within the OI community\nDiscuss patient-relevant research questions and identify research priorities\n\nPatients will have the opportunities to \n\nLearn about the recent advancements in medicines development in OI\nInitiate collaborations and partnerships with all stakeholders\nActively participate and engage in scientific discussions about OI\n\nPatient centricity will run as a core-narrative in all our sessions and panel discussions\, encouraging each stakeholder to consider the patient perspective in their current and future work. \nAgenda (might be subject to change)\nWEDNESDAY\, 12 JUNE 2024\n\n\n\n19.30/20.00\nArrival and Speakers Dinner at the Hotel\nBY INVITATION ONLY\n\n\n\n THURSDAY\, 13 JUNE 2024 (8.30 – 18.00 CEST)\n\n\n\n8.00 – 8.30\nRegistration\n \n\n\n8.30 – 8.40\nOpening Ceremony and Welcome\nClaudia Fuchs (EURORDIS) \nLeonardo Panzeri (AS.IT.O.I.) \nDonald Lo (EATRIS)\n\n\n\nOpening Speech\n\n\n\n8.40 – 9.00\nWhat does it mean living with OI?\nGem Turner\n\n\n\nSESSION 1: Multi-national strategies for Patient Advocacy in OI\nModerators: Claudia Fuchs\n\n\n\n9.00 – 9.10\nThe European Reference Network on rare bone diseases (ERN-Bond)\nLuca Sangiorgi (Istituto Ortopedico Rizzoli)\n\n\n9.10 – 9.20\nThe European Registries for Rare Bone and Mineral Conditions (EuRR-Bone)\nClaudia Finis (DOIG (German Ostogenesis Imperfecta Organisation) and Berlin Institute of Health at Charité)\n\n\n9.20 – 9.30\nPatient Engagement Initiatives in Rare Diseases: an Italian Perspective\nAnnalisa Scopinaro (UNIAMO – Federazione Italiana Malattie Rare)\n\n\n9.30 – 9.45\nQ/A session\n\n\n\nPANEL DISCUSSION – Ask the Expert: How to become a Patient Advocate in OI?\nModerators: Marina O’Callaghan & Claudia Fuchs\n\n\n\nLightning talks: European and National Patient Engagement Activities in OI\n\n\n10.00 – 10.05\nStronger Together: OIFE’s Patient Engagement Initiatives\nAnna Rossi (OIFE)\n\n\n10.05 – 10.10\nIntroduction to Patient Engagement Activities in Italy\nSimona Paveri (AS.IT.O.I.)\n\n\n10.10 – 10.15\nIntroduction to Patient Engagement Activities in Norway\nInger-Margrethe Stavdal Paulsen (Norsk Forening for Osteogenesis Imperfecta)\n\n\n10.15 – 10.20\nIntroduction to Patient Engagement Activities in Spain\nMiguel Rodríguez Molina (Asociación Nacional Huesos de Cristal OI España – AHUCE)\n\n\n10.20 – 10.25\nBrittle Bone Society – Support that matters most\nPatricia Osborne (Brittle Bone Society – BBS)\n\n\n10.25 – 11.00\nPanel Discussion – Ask the Expert: How to become a Patient Advocate in OI?Panelists: Gem Turner\, Annalisa Scopinaro\, Anna Rossi\, Miguel Rodríguez Molina\, Patricia Osborne\, Emilija and Dace Liepina\, Marie Holm Laursen \n\n\n\n11.00 – 11.30 Coffee Break \n SESSION 2: Initiatives in the OI community \nModerators: Anna Rossi & Luca Sangiorgi \n\n\n\n11.30 – 11.40\nThe Impact Survey Initiative\nOliver Semler (University of Cologne)\n\n\n11.40 – 11.50\nAdult Health Initiative\nStuart Ralson (University of Edinburgh)\n\n\n11.50 – 12.00\nCare4BrittleBones Initiative Key4OI\nLida Zhytnik (Amsterdam UMC)\n\n\n12.00 – 12.15\nQ/A session\n\n\n\n SESSION 3: Current Treatment Options in OI – a multistakeholder perspective\nModerators: Anna Rossi & Luca Sangiorgi \n\n\n\n12.20 – 12.40 \nIntroduction to different treatment options and approaches for OI\nNick Bishop (The University of Sheffield)\n\n\n\n12.40  – 14.00 Lunch Break \nCONTINUATION SESSION 3 \n\n\n\nLightning talks: Current ongoing clinical trials with specific focus on challenges and opportunities of Patient Engagement\n\n\n14.00 – 14.10 \nREMEDi4ALL MOI-A Study\nJudith Cohen (University of Hull)\n\n\n14.10 – 14.20\nTOPaZ trial\nStuart Ralson (University of Edinburgh)\n\n\n14.20 – 14.30\nThe ORBIT  Phase 2/3 study: a collaborative design to study outcomes in OI\nLuigi Picaro (Mereo BioPharma) \n\n\n14.30 – 14.40 \nBOOSTB4 Trial: Boost Brittle Bones Before Birth\nCecilia Götherström (Karolinska Institute)\n\n\n14.40 – 14.55 \nQ/A session\n\n\n\n SESSION 4:”Patient-centered clinical trial design”\nModerators: Nick Bishop & Claudia Fuchs \n\n\n\nLightining talks: Patient perception and experience in clinical trials\n\n\n15.00 – 15.10\nPatient Perspective as a Teenager\nEmilija and Dace Liepina\n\n\n15.10 – 15.20\nPatient Experience on the ASTEROID Trial\nMarie Holm Laursen\n\n\n15.20 – 15.30 \nPatient Engagement activites within the R4ALL demonstrator (MOI-A Study)\nMarina O’Callaghan\n\n\n15.30 – 15.45 \nQ/A session\n\n\n\n15.45– 16.15 Coffee Break \nPANEL DISCUSSION – Innovative outcome measures in clinical trials\nModerators: Inger-Margrethe Stavdal Paulsennger & Claudia Fuchs  \n\n\n\nLightning talks: Quality of Life assessment (QoL) and patient related innovative outcome measures in clinical trials in OI\n\n\n16.15 – 16.25\nQoL assessment in OI\nNick Bishop (The University of Sheffield)\n\n\n16.25 – 16.35 \nDeveloping patient related outcome measures on mobility in rare bone disorders\nLuca Sangiorgi (Istituto Ortopedico Rizzoli)\n\n\n16.35 – 16.45\nRegulatory perspective on innovative outcome measures – how can patients contribute?\nVioleta Stoyanova-Beninska (Committee for Orphan Medicinal Products)\n\n\n16.45 – 16.55 \nPatient perspective on innovative outcome measure – how to advocate?\nInger-Margrethe Stavdal Paulsen (Norsk Forening for Osteogenesis Imperfecta)\n\n\n17.00 – 17.40 \nPanel Discussion – innovative outcome measures in clinical trials  \nPanelists: Nick Bishop\, Stuart Ralson\, Luigi Picaro\, Cecilia Götherström\, Oliver Semmler\, Lida Zhytnik\, Violeta Stoyanova-Beninska\n\n\n\n\n\n\n17.40 – 17.50\nPatient engagement in early Health Technology Assessment (eHTA)\nZsuzsanna Petyko (Syreon Research Institute)\n\n\n17.50 – 18.00\nWrap Up and Closing Remarks\nClaudia Fuchs (EURORDIS)\n\n\n\n18.00 Get Together \n FRIDAY\, 14 JUNE 2024 \n9.00 – 11.00 CEST\n\n\n\n9.00 – 11.00\nWorkshop on early Health Technology Assessment (eHTA)\nBY INVITATION ONLY \nDalma Hosszu (Syreon Research Institute)\n\n\n\n*Please note that only meals (lunch\, coffee breaks and get-together) are covered by the event organisers. Participants need to arrange their own travel and accomodation. \n Download the programme here. \nDownload the event flier here. \nSpeakers\nClick here to see the complete list of speakers and their bios. \nConfirmed speakers: \n \n  \nOrganisers\nOrganised within the REMEDi4ALL project in collaboration with EURORDIS – Rare Disease Europe\, Beacon for Rare Diseases\, Associazione Italiana Osteogenesi Imperfetta – AS.IT.O.I.\, Osteogenesis Imperfecta Federation Europe – OIFE\, European Reference Network on rare bone diseases – ERN BOND. \n \n  \nRegistration\nThis event will be a hybrid event\, hosted both online and in-person (Bologna\, Italy). Registration closes on 31 May\, 2024. \nRegister here
URL:https://remedi4all.org/event/2nd-multi-stakeholder-meeting-ensuring-patient-centricity-in-osteogenesis-imperfecta-research/
LOCATION:Savoia Hotel Regency\, Via del Pilastro\, 2\, Bologna\, Italy
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END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240622
DTEND;VALUE=DATE:20240626
DTSTAMP:20260422T010514
CREATED:20240516T134216Z
LAST-MODIFIED:20240516T134216Z
UID:6717-1719014400-1719359999@remedi4all.org
SUMMARY:ICCBH 2024 - 11th International Conference on Children’s Bone Health
DESCRIPTION:This conference will bring together scientists\, clinicians\, trainees\, allied health professionals and others from a wide range of disciplines to gain a better understanding of the growing skeleton in relation to childhood health and disease and to discuss the most recent developments in clinical outcomes\, novel therapies\, and genetic discoveries. The conference scope ranges from basic molecular mechanisms to clinical aspects\, from bone pathophysiology to prevention and medical and surgical treatment. \nThis conference is for anyone with an interest in bone metabolism and bone mass in children\, adolescents and young adults to attend. \nThe ICCBH conference takes place every two years. The 2022 meeting in Dublin was attended by over 400 participants from across the globe\, making it truly multinational and multidisciplinary. \nThe scientific programme is designed to present researchers\, physicians\, and allied health professionals with the newest research\, with sessions including plenary lectures by world-leading experts\, symposia\, workshops\, oral abstract communications\, poster sessions and meet the expert sessions. The conference will offer investigators from around the world an opportunity to meet with each other and with industry representatives. \nICCBH 2024 is your opportunity to hear about and discuss the newest developments in our understanding of paediatric bone health. \nLearn more and register here.
URL:https://remedi4all.org/event/iccbh-2024-11th-international-conference-on-childrens-bone-health/
LOCATION:Salzburg Congress\, Auerspergstraße 6\, 5020 Salzburg\, Austria\, Salzburg\, Austria
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20250129T123000
DTEND;TZID=Europe/Amsterdam:20250129T133000
DTSTAMP:20260422T010514
CREATED:20241203T133709Z
LAST-MODIFIED:20241209T151131Z
UID:9127-1738153800-1738157400@remedi4all.org
SUMMARY:Webinar: Welcome to the REMEDi4ALL Digital Academy
DESCRIPTION:Are you ready to embark on an exciting digital learning journey with us? Join us on Wed Jan 29 2025 at 12:30 PM CET for our online event where we will introduce you to our innovative academy. \nDuring this event\, you will have the opportunity to learn about our cutting-edge digital courses\, interact with our experienced instructors\, and discover how REMEDi4ALL can help you enhance your skills and knowledge in drug repurposing. \nDon’t miss out on this chance to learn all about our repurposing curriculum and our upcoming events! Register now and get ready to take your drug repurposing knowledge to the next level with REMEDi4ALL Digital Academy. \nLearn more about the launch of the Digital Academy here.
URL:https://remedi4all.org/event/remedi4all-digital-academy-webinar/
LOCATION:Online Event
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20250221T110000
DTEND;TZID=Europe/Amsterdam:20250221T123000
DTSTAMP:20260422T010514
CREATED:20250121T164921Z
LAST-MODIFIED:20250124T135912Z
UID:9755-1740135600-1740141000@remedi4all.org
SUMMARY:REMEDi4ALL Clinical Trials Webinar Series: Introduction to Clinical Trials
DESCRIPTION:Register for Webinar 1 here!\n  \nMark your calendars for 11.00 – 12.30 CET on 21 February\, 28 February and 7 March as we take an early lunch to discuss clinical trials with REMEDi4ALL partners Beacon for Rare Diseases\, EURORDIS and ECRIN! \nEach session will build on the knowledge gained in the previous session – with session 1 acting as a beginners guide and session 3 involving a more in-depth look at who and what makes a clinical trial run successfully. \nWebinar 1: Introduction to Clinical Trials – 21 Feb (11:00-12:30 CET)\nWhy we do clinical research and what the process looks like for participants.\nThis webinar will explain why we do clinical research and what the process looks like for participants and answer some of the most common questions raised by trial participants and patients interested in clinical research. Find out more here. \nSee our other event listings to register for webinars 2 (rare diseases) and 3 (support and management of clinical trials).
URL:https://remedi4all.org/event/webinar-series-clinical-trials/
LOCATION:Online Event
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20250228T110000
DTEND;TZID=Europe/Amsterdam:20250228T123000
DTSTAMP:20260422T010514
CREATED:20250124T124644Z
LAST-MODIFIED:20250124T140332Z
UID:9918-1740740400-1740745800@remedi4all.org
SUMMARY:REMEDi4ALL Clinical Trials Webinar Series: Clinical Trials for Rare Diseases
DESCRIPTION:Register for Webinar 2 here!\n\nWebinar 2: Clinical Trials for Rare Diseases – 28 Feb (11:00-12:30 CET)\nExploring different ways of conducting clinical trials\, particularly for rare disease. \nOur Rare Disease Day special! This webinar will explore different ways of conducting clinical trials in smaller populations where ‘traditional’ methods might not be as appropriate. We will describe what endpoints are and how these can guide trial design in a patient-centric way. We will explore how the patient voice can help inform trial design and outcomes. Find out more here!
URL:https://remedi4all.org/event/remedi4all-clinical-trials-webinar-rare-diseases/
LOCATION:Online Event
ATTACH;FMTTYPE=image/png:https://remedi4all.org/wp-content/uploads/2025/01/CT-Webinar-Series-Webinar-2-FINAL.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20250228T120000
DTEND;TZID=Europe/Amsterdam:20250228T133000
DTSTAMP:20260422T010514
CREATED:20250220T123719Z
LAST-MODIFIED:20250220T123719Z
UID:10447-1740744000-1740749400@remedi4all.org
SUMMARY:DREAMS Project Webinar - Clinical Trials in Focus: Innovations and Patient Perspectives in Rare Diseases
DESCRIPTION:Join leading experts as they explore advancements in clinical trial methodologies\, outcome measures\, and lessons learned from research in muscular disorders. \nDuring this session\, experts in the field will share insights on: \n• The need for innovation in clinical trial methodologies for muscular disorders. \n• An overview of outcome measures in clinical trials for neuromuscular disorders. \n• Lessons learned from a decade of clinical trials on Duchenne muscular dystrophy (DMD). \nAs part of the event\, a patient will share their personal journey and insights on participating in clinical trials. Following their testimony\, there will be an interactive Q&A session where you can engage directly and ask questions.
URL:https://remedi4all.org/event/dreams-project-webinar-clinical-trials-in-focus-innovations-and-patient-perspectives-in-rare-diseases/
LOCATION:Online Event
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20250307T110000
DTEND;TZID=Europe/Amsterdam:20250307T123000
DTSTAMP:20260422T010514
CREATED:20250124T125052Z
LAST-MODIFIED:20250124T140654Z
UID:9917-1741345200-1741350600@remedi4all.org
SUMMARY:REMEDi4ALL Clinical Trials Webinar Series: Support and Management of Clinical Trials
DESCRIPTION:Register for Webinar 3 here!\n  \nWebinar 3: Support and Management of Clinical Trials – 7 March (11:00-12:30 CET)\nExploring different organisations\, processes and pathways for expert support when planning\, setting up and running a clinical trial.\nIn this third and final webinar in the series we will highlight different collaborations that are required in running a clinical trial efficiently. Find out more here!
URL:https://remedi4all.org/event/remedi4all-clinical-trials-webinar-series-support-management-clinical-trials/
LOCATION:Online Event
ATTACH;FMTTYPE=image/png:https://remedi4all.org/wp-content/uploads/2025/01/CT-Webinar-Series-Webinar-3-FINAL-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250317
DTEND;VALUE=DATE:20250319
DTSTAMP:20260422T010514
CREATED:20250122T092332Z
LAST-MODIFIED:20250124T131341Z
UID:9772-1742169600-1742342399@remedi4all.org
SUMMARY:REMEDi4ALL Drug Repurposing Bootcamp for Academics
DESCRIPTION:Drug repurposing offers a faster\, more cost-effective way to develop treatments\, addressing urgent patient needs and unlocking opportunities for academic innovation. However\, the journey from a repurposing concept to a market-ready product is complex\, presenting significant challenges for researchers. The REMEDi4ALL Drug Repurposing Bootcamp for Academics is designed to support senior post-doctoral researchers and early-career principal investigators leading promising projects by equipping them with the skills and knowledge to navigate this pathway successfully. \nThis immersive\, day-and-a-half training programme combines expert lectures\, interactive discussions\, and working groups to cover key topics such as regulatory engagement\, collaboration building\, funding applications\, and science communication. By participating\, attendees will not only develop a clearer understanding of how to deliver real patient impact but also join the growing REMEDi4ALL community. \nTwenty fully funded places are available\, covering travel\, accommodation\, and access to this free training. Applications are open until February\, with reviews conducted on a rolling basis. \nFind out more information here: REMEDi4ALL Drug Repurposing Bootcamp for Academics \nRegister here!
URL:https://remedi4all.org/event/dr-bootcamp-academics-2025/
LOCATION:Hinxton Hall\, Wellcome Genome Campus\, Hinxton\, Cambridge\, CB10 1RQ\, United Kingdom
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20250401T120000
DTEND;TZID=Europe/Amsterdam:20250401T133000
DTSTAMP:20260422T010514
CREATED:20250319T090008Z
LAST-MODIFIED:20250319T090008Z
UID:11056-1743508800-1743514200@remedi4all.org
SUMMARY:Unlocking research opportunities: Partnering with academics
DESCRIPTION:Are you looking to engage in research but don’t know where to start?\nResearch is a key priority for many patient groups but connecting with the right academic partners is not often straightforward. With limited awareness of rare conditions in academia\, knowing where to start\, initiating conversations\, and building lasting relationships with the right research teams can be challenging. \nWhat will you learn in this webinar?\n\nHow academic research works and the structures that shape it\nWhere to find researchers working on your condition and how to connect with them\nPractical ways to boost the appeal of your patient group to researchers\nA real-world example of a patient group successfully partnering with academics and getting involved in research\n\n  \nFor more information visit the event page here.
URL:https://remedi4all.org/event/unlocking-research-opportunities-partnering-with-academics/
LOCATION:Online Event
ATTACH;FMTTYPE=image/jpeg:https://remedi4all.org/wp-content/uploads/2025/03/Academics-webinar-graphic-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250506
DTEND;VALUE=DATE:20250507
DTSTAMP:20260422T010514
CREATED:20241112T085350Z
LAST-MODIFIED:20250423T074835Z
UID:8841-1746489600-1746575999@remedi4all.org
SUMMARY:REMEDi4ALL Funders Network Event 2025
DESCRIPTION:Pre-iDR25 REMEDi4ALL Funders Network Event\nIn an exclusive pre-conference meeting\, members and observers of the REMEDi4ALL Funders Network will come together to share best practices and discuss important topics. This meeting will be followed by an evening boat trip on the Amsterdam canals and a Funders Network dinner at IJver restaurant. \nRegister here!\n  \nMeeting location: Royal Netherlands Academy of Arts and Sciences (KNAW)\, Het Trippenhuis\, Kloveniersburgwal 29\, Amsterdam \nDinner location: IJver Restaurant\, Scheepsbouwkade 72\, Amsterdam
URL:https://remedi4all.org/event/2025-remedi4all-funders-network-meeting/
LOCATION:Royal Netherlands Academy of Arts and Sciences (KNAW)\, Het Trippenhuis\, Kloveniersburgwal 29\, 1011 JV\, Amsterdam\, 1011 JV\, Netherlands
ATTACH;FMTTYPE=image/png:https://remedi4all.org/wp-content/uploads/2024/11/iDR25-Workshops-3-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20250506T120000
DTEND;TZID=Europe/Amsterdam:20250506T183000
DTSTAMP:20260422T010514
CREATED:20241115T092618Z
LAST-MODIFIED:20250414T104630Z
UID:8873-1746532800-1746556200@remedi4all.org
SUMMARY:#iDR25 Pre-Conference Workshops
DESCRIPTION:To kick off the iDR25 conference series\, two exclusive pre-conference workshops will be held on 6th May 2025 at the Royal Netherlands Academy of Arts and Sciences (KNAW). The workshops are primarily aimed at academics\, early career researchers and patient representatives looking to increase the understanding of key topics related to medicines repurposing and gain practical skills to apply to current and future drug repurposing projects. \nRegister today for the pre-iDR25 workshop series!\n  \nWorkshop 1: Health Technology Assessment: a key tool to patient access\nTuesday 6th May 2025\n12:30-14:30\n  \n \nAfter regulatory approval by the EMA\, Health Technology Assessment (HTA) becomes a pivotal process in determining whether new treatments will be accessible to patients\, influencing their affordability\, availability\, and overall impact on healthcare systems. The HTA dossier encapsulates critical information\, including the medical\, economic\, social\, and ethical considerations of using a health technology—such as a repurposed medicine. Prepared by the product developer or sponsor\, these dossiers undergo evaluation by HTA agencies\, like EUnetHTA 21 in the EU or NICE in the UK\, to assess their value and feasibility. \nThis workshop  will equip researchers\, patient representatives and product developers with the knowledge and tools to design their repurposing projects to meet HTA standards from the onset. With a focus on early alignment with HTA requirements\, evidence planning\, and incorporating patient engagement into the HTA process from the beginning\, attendees will gain actionable insights to streamline their projects through HTA evaluations\, enhancing the likelihood of timely patient access. \nThis workshop offers a unique opportunity to learn proactive strategies to maximise the success of drug repurposing projects in achieving their ultimate goal—reaching and benefiting patients. \n  \n[team_member description=”” social=”” link_element=”both” color=”accent-color” image_url=”https://remedi4all.org/wp-content/uploads/2024/11/Dalma-Hosszu.png” name=”Dalma Hosszú” job_position=”Syreon Research Institute” link_url=”https://remedi4all.org/people/idr-speaker/dalma-hosszu/”]\n [team_member description=”” social=”” link_element=”both” color=”accent-color” image_url=”https://remedi4all.org/wp-content/uploads/2024/11/Andras-Perenyi.png” name=”András Perényi” job_position=”Syreon Research Institute” link_url=”https://remedi4all.org/people/idr-speaker/andras-perenyi/”]\n \n \n \n \n  \nWorkshop 2: Navigating the regulatory path for medicinal product repurposing\nTuesday 6th May 2025\n15:00-18:30\n  \n \nIn this workshop\, we will discuss the regulatory path and key milestones for advancing a repurposed/repositioned medicinal product from preclinical development to market authorisation in Europe\, tailored for academic researchers and early-career developers navigating such processes for the first time. Whether you are preparing for your first clinical trial application or strategising for market authorisation\, this session will provide crucial tools and insights to help build your regulatory strategy including: \n\nCore elements of a Clinical Trial Application (CTA)\nObtaining Orphan Drug Designations for rare diseases\nEffective engagement with regulatory authorities (e.g. scientific advice)\nOverview of possible registration pathways to bring promising therapies to patients faster\nBuilding the Common Technical Document (CTD) for a European Marketing Authorisation Application (MAA)\n\nConfirmed speakers \n [team_member description=”” social=”” link_element=”both” color=”accent-color” image_url=”https://remedi4all.org/wp-content/uploads/2024/11/Violeta-_Workshop.png” name=”Violeta Stoyanova-Beninska” job_position=”Human Division of the European Medicines Agency (EMA)” link_url=”https://remedi4all.org/people/idr-speaker/violeta-stoyanova-beninska/”]\n [team_member description=”” social=”” link_element=”both” color=”accent-color” image_url=”https://remedi4all.org/wp-content/uploads/2024/11/Rosan-Vegter.png” name=”Rosan Vegter” job_position=”EATRIS” link_url=”https://remedi4all.org/people/idr-speaker/rosan-vegte/”]\n[team_member description=”” social=”” link_element=”both” color=”accent-color” image_url=”https://remedi4all.org/wp-content/uploads/2024/11/Nadina-Grosios.png” name=”Nadina Grosios” job_position=”Oncoknow” link_url=”https://remedi4all.org/people/idr-speaker/nadina-grosios/”] \n \n \nRegister today for the pre-iDR25 workshop series!\n  \nNote: this event is separate to the main conference. Find out more about iDR25: Medicines Reimagined here. \nQuestions? Contact conference@remedi4all.org.
URL:https://remedi4all.org/event/idr25-pre-conference-workshops/
LOCATION:Royal Netherlands Academy of Arts and Sciences (KNAW)\, Het Trippenhuis\, Kloveniersburgwal 29\, 1011 JV\, Amsterdam\, 1011 JV\, Netherlands
ATTACH;FMTTYPE=image/png:https://remedi4all.org/wp-content/uploads/2024/11/iDR25-Workshops-1-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250507
DTEND;VALUE=DATE:20250509
DTSTAMP:20260422T010514
CREATED:20241007T132248Z
LAST-MODIFIED:20241209T151356Z
UID:8550-1746576000-1746748799@remedi4all.org
SUMMARY:International Drug Repurposing Conference 2025 - #iDR25
DESCRIPTION:Exciting news for anyone passionate about healthcare innovation—iDR25\, the International Drug Repurposing Conference\, is coming up on 7-8th May 2025 in the beautiful city of Amsterdam in The Netherlands!
URL:https://remedi4all.org/event/international-drug-repurposing-conference-2025-idr25/
LOCATION:Amsterdam\, the Netherlands
ATTACH;FMTTYPE=image/png:https://remedi4all.org/wp-content/uploads/2024/09/iDR25-Branding-SoMe-Card.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20250611T190000
DTEND;TZID=Europe/Amsterdam:20250611T203000
DTSTAMP:20260422T010514
CREATED:20250512T110903Z
LAST-MODIFIED:20250512T110903Z
UID:12334-1749668400-1749673800@remedi4all.org
SUMMARY:Recurrent Respiratory Papillomatosis (RRP) Awareness Day Webcast
DESCRIPTION:RRP Awareness Day is an international event to raise awareness about recurrent respiratory papillomatosis (RRP)\, a debilitating disease driven by chronic HPV 6/11 viral infection.\nJoin the RRP Awareness Day global webcast on June 11th to hear from RRP patients\, their caregivers\, and the healthcare community supporting them about:\n\n\n\n\n\nPatient and caregiver experience with RRP\nSignificant burden of living with RRP\nChallenges of repeated surgeries and risk of irreversible injury\nNeed for new innovations\n\nCO-HOSTS\n\n\nRRP Foundation\nKim McClellan\, President \n\n\n\n\nPRECIGEN\nHelen Sabzevari\, PhD\, President and CEO \n\n\n\nWho should attend?\n\n\n\n\n\n\nRRP patients\nCaregivers and family members\nHealthcare providers\nCommunity supporting RRP patients
URL:https://remedi4all.org/event/recurrent-respiratory-papillomatosis-rrp-awareness-day-webcast/
LOCATION:Online Event
ATTACH;FMTTYPE=image/png:https://remedi4all.org/wp-content/uploads/2025/05/mnt7l7APQUyc2_HJmrdS_Q.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20250731T163000
DTEND;TZID=Europe/Amsterdam:20250731T173000
DTSTAMP:20260422T010514
CREATED:20250721T084522Z
LAST-MODIFIED:20250721T084539Z
UID:14110-1753979400-1753983000@remedi4all.org
SUMMARY:Webinar: Cures Within Reach new funding call: Clinical trials to validate AI-driven drug repurposing
DESCRIPTION:Artificial intelligence (AI) is increasingly seen as a powerful tool in the search for new treatments – especially through drug repurposing. By analysing large sets of data\, AI can help identify existing medicines that might work for different conditions – something particularly valuable in rare diseases. \nHowever\, do AI-generated predictions actually work when tested in real-life clinical trials? \nCures Within Reach is helping to explore this question through a new funding call. They’re inviting letters of intent for Phase I/IIA clinical trials that will test and validate AI-based repurposing ideas\, with a preference for rare disease. \nLearn more about the call here. \n\n\n\n\nThis webinar hosted by Beacon for Rare Diseases in collaboration with REMEDi4ALL and Cures within Reach will cover: \n\nA breakdown of what this funding call is about\nAdvice from Cures Within Reach on what makes a strong application\nHow patient groups can get involved in applications\nA practical example of a patient group contributing to an AI-led initiative\nThe opportunity to ask any questions you might have to the Cures Within Reach team\n\n\n\n\nRegister for the webinar here!
URL:https://remedi4all.org/event/cures-within-reach-new-funding-call-clinical-trials-to-validate-ai-driven-drug-repurposing/
LOCATION:Online Event
ATTACH;FMTTYPE=image/png:https://remedi4all.org/wp-content/uploads/2025/07/Image20250718102044-scaled.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20251006T140000
DTEND;TZID=Europe/Amsterdam:20251010T170000
DTSTAMP:20260422T010514
CREATED:20250415T104016Z
LAST-MODIFIED:20250811T092029Z
UID:11711-1759759200-1760115600@remedi4all.org
SUMMARY:2025 REMEDi4ALL Hackathon
DESCRIPTION:Are you an early career researcher (ECR) who wants to delve into drug repurposing?\n  \nJoin us for the second REMEDi4ALL Hackathon\, 6-10 October 2025\, held at Hotel Checkin Montserrat\, near Barcelona\, Spain. \nThe REMEDi4ALL Repurposing Hackathon is designed to help early career researchers learn by doing. Join a small team of international trainees keen to learn about the repurposing pathway on a week-long residential course where you aim to plan the development of a repurposing candidate for a specific patient community.  \nWho is the Hackathon for?\n\nStudents and researchers in the early stages of their career up to 2 years post-doc\nIndividuals with an interest in drug repurposing\nIndividuals with an excellent scientific track record\nPrevious experience in the drug repurposing field will be considered a plus\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nWhat will you learn?\nThe REMEDi4ALL Hackathon aims to teach participants how to: \n\nUse computational tools to generate repurposing candidates suitable for a defined indication\nNarrow down potential repurposed drug options tailored to a particular indication\nIdentify needs and knowledge gaps in a repurposing project\, helping to define the path for a drug candidate\nWork together with other ECRs to complete a repurposing challenge\n\n\n  \n\nTraining format\n\n\n\nIn-person\, residential training for 15 participants\nAdvance registration required\nSmall teams of early career researchers work on a project throughout the week\nSupport through lectures and guidance of REMEDi4ALL experts\, and external advisers\, including patient experts\n\n\n\n\n\n  \nInterested in learning more? Check out our highlights video from 2024 or explore the Hackathon website within the REMEDi4ALL Repurposing Academy.
URL:https://remedi4all.org/event/2025-remedi4all-hackathon/
LOCATION:Hotel Checkin Montserrat\, Carrer Querol\, 08293 Collbató\, Barcelona\, Spain
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20251121T140000
DTEND;TZID=Europe/Amsterdam:20251121T153000
DTSTAMP:20260422T010514
CREATED:20250915T161006Z
LAST-MODIFIED:20250915T161006Z
UID:15186-1763733600-1763739000@remedi4all.org
SUMMARY:Webinar: IP Strategies for Repurposing
DESCRIPTION:Discover the value of having an intellectual property (IP) strategy in your repurposing project and how to use this to drive success! \nNot sure where to start with intellectual property (IP) in your drug repurposing project? REMEDi4ALL’s Repurposing Academy is here to guide you! \nJoin us for our upcoming webinar where we will explore the importance of considering IP as part of your broader drug repurposing strategy. \nWe’ll discuss common challenges you may encounter and key considerations to keep in mind throughout your repurposing project. Additionally\, we’ll outline practical steps for securing IP protection for repurposed drugs and show how a strong IP strategy can help drive your project forward.
URL:https://remedi4all.org/event/webinar-ip-for-repurposing/
LOCATION:Online Event
ATTACH;FMTTYPE=image/png:https://remedi4all.org/wp-content/uploads/2025/09/CT-Webinar-Series-Webinar-1-FINAL.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20251127T130000
DTEND;TZID=Europe/Amsterdam:20251127T140000
DTSTAMP:20260422T010514
CREATED:20251113T085710Z
LAST-MODIFIED:20251127T103945Z
UID:16671-1764248400-1764252000@remedi4all.org
SUMMARY:ProvenConnect REMEDi4ALL Webinar
DESCRIPTION:* This is an online event that will take place 1200–1300 UK time (1300-1400 CET) on Zoom. * \nREMEDi4ALL is presenting to the TAR Network in a Proven Connect webinar. Speakers Alicia Soler (Lead Scientific Operations at REMEDi4ALL /EATRIS)\, Heleen van der Meer (Senior programme manager international drug repurposing at ZonMw) and Pan Pantziarka (Director of Drug Repurposing at Anticancer Fund) will present the REMEDi4ALL project and Funder’s Network.
URL:https://remedi4all.org/event/provenconnect-remedi4all-webinar/
LOCATION:Online Event
ATTACH;FMTTYPE=image/png:https://remedi4all.org/wp-content/uploads/2025/11/REMEDi4ALL-funders-network-Post-para-LinkedIn-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260311T080000
DTEND;TZID=Europe/London:20260312T170000
DTSTAMP:20260422T010514
CREATED:20251218T141507Z
LAST-MODIFIED:20260217T133321Z
UID:17132-1773216000-1773334800@remedi4all.org
SUMMARY:REMEDi4ALL Drug Repurposing Bootcamp for Academics 2026
DESCRIPTION:From Hypothesis to Impact: Navigating the Repurposing Pathway\nDrug repurposing represents a vital pathway for treatment development\, both for patient communities and academic innovators. Finding new uses for existing drugs can provide a more rapid pathway to patient impact\, both by reducing the number of steps to a clinical trial and reducing the financial barrier to research. \nWhile the potential of repurposing is huge\, the pathway to deliver a repurposed medicine from concept to market remains a hugely challenging one. This is particularly hard for academic researchers to navigate – employing their scientific skill set to the complex and highly regulated world of drug development unsupported can lead to projects quickly becoming mired in challenges or uncertainty. \nThe REMEDi4ALL Drug Repurposing Bootcamp for Academics\, held at the Wellcome Genome Campus in Cambridge\, aims to support researchers embarking on this journey. This pilot training course will provide face to face training to explain the full drug repurposing pathway\, helping researchers understand the steps involved in turning a repurposing hypothesis into a product capable of delivering real impact to patients.
URL:https://remedi4all.org/event/remedi4all-drug-repurposing-bootcamp-for-academics-2026-2/
LOCATION:Hinxton Hall\, Wellcome Genome Campus\, Hinxton\, Cambridge\, CB10 1RQ\, United Kingdom
ATTACH;FMTTYPE=image/png:https://remedi4all.org/wp-content/uploads/2025/11/R4ALL-academic-bootcamp-2026.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260511
DTEND;VALUE=DATE:20260512
DTSTAMP:20260422T010514
CREATED:20251114T114854Z
LAST-MODIFIED:20260401T081913Z
UID:16685-1778457600-1778543999@remedi4all.org
SUMMARY:REMEDi4ALL Funders Network Meets Policy
DESCRIPTION:REMEDi4ALL Funders Network Meets Policy\nAs in previous editions\, #iDR26 will feature a pre-conference meeting dedicated to the Funders Network on Monday 11 May.  \nThis interactive workshop will bring together research funders and policy-makers to explore opportunities on coordinated funding models and co-funding practices with policy considerations around reimbursement and market access\, creating an end-to-end perspective.  \nAgenda:  \n\n12.30-13.30: Lunch \n13.30-15.30: Session 1: Push mechanisms (Funders Network & innovative funding models) \n15.30-16.00: Break \n16.00-18.00: Session 2: Pull mechanisms (Regulatory and pricing & reimbursement policy)  \n16.00-18.00: Networking drinks  \n\nAim of the Session  \n\nConvene research funders and policy representatives to build shared understanding and alignment.  \nIdentify actions funders can take to push drug repurposing forward.  \nIdentify pull mechanisms that policymakers can implement (e.g.\, incentives for industry\, regulatory levers).  \n\n Please note that this is an invitation-only event.   \nAre you a funder who is not yet a member but interested in joining? Contact us at remedi4all@zonmw.nl. 
URL:https://remedi4all.org/event/remedi4all-funders-network-event-2026/
ATTACH;FMTTYPE=image/png:https://remedi4all.org/wp-content/uploads/2025/11/iDR26-Promo-Marketplace-Meeting-061125-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260512
DTEND;VALUE=DATE:20260514
DTSTAMP:20260422T010514
CREATED:20251023T130544Z
LAST-MODIFIED:20251023T130710Z
UID:16315-1778544000-1778716799@remedi4all.org
SUMMARY:International Drug Repurposing Conference 2026 - #iDR26
DESCRIPTION:Join iDR26\, the International Drug Repurposing Conference\, on 12-13 May 2026 in Brussels\, Belgium to explore the future of patient-centric medicines repurposing.   \nFrom rare diseases and AI-driven drug discovery\, to policy\, funding and community-led success stories\, iDR26 brings together the global drug repurposing community to navigate the next chapter in maximising patient benefit. \nExplore the full conference here!
URL:https://remedi4all.org/event/idr26/
LOCATION:Maison de la Poste\, Brussels\, Belgium\, Rue Picard 7\, Brussels\, Belgium
ATTACH;FMTTYPE=image/png:https://remedi4all.org/wp-content/uploads/2025/10/iDR26_Promo_20251001b-1-scaled.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20260906T140000
DTEND;TZID=Europe/Amsterdam:20260911T170000
DTSTAMP:20260422T010514
CREATED:20260225T154749Z
LAST-MODIFIED:20260325T092254Z
UID:17899-1788703200-1789146000@remedi4all.org
SUMMARY:2026 REMEDi4ALL Hackathon
DESCRIPTION:Are you an early career researcher (ECR) who wants to delve into drug repurposing?\n  \nJoin us for the third REMEDi4ALL Hackathon\, 6-11 September 2026\, held at Hotel Checkin Montserrat\, near Barcelona\, Spain. \nThe REMEDi4ALL Repurposing Hackathon is designed to help early career researchers learn by doing. Join a small team of international trainees keen to learn about the repurposing pathway on a week-long residential course where you aim to plan the development of a repurposing candidate for a specific patient community.  \nWho is the Hackathon for?\n\nStudents and researchers in the early stages of their career up to 2 years post-doc\nIndividuals with an interest in drug repurposing\nIndividuals with an excellent scientific track record\nPrevious experience in the drug repurposing field will be considered a plus\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nWhat will you learn?\nThe REMEDi4ALL Hackathon aims to teach participants how to: \n\nUse computational tools to generate repurposing candidates suitable for a defined indication\nNarrow down potential repurposed drug options tailored to a particular indication\nIdentify needs and knowledge gaps in a repurposing project\, helping to define the path for a drug candidate\nWork together with other ECRs to complete a repurposing challenge\n\n\n  \n\nTraining format\n\n\n\nIn-person\, residential training for 15 participants\nAdvance registration required\nSmall teams of early career researchers work on a project throughout the week\nSupport through lectures and guidance of REMEDi4ALL experts\, and external advisers\, including patient experts\n\n\n\n\n\n  \nInterested in learning more? Check out our highlights video from 2025 or explore the Hackathon website within the REMEDi4ALL Repurposing Academy.\nApplications open now: apply here
URL:https://remedi4all.org/event/2026-remedi4all-hackathon/
LOCATION:Hotel Checkin Montserrat\, Carrer Querol\, 08293 Collbató\, Barcelona\, Spain
ATTACH;FMTTYPE=image/jpeg:https://remedi4all.org/wp-content/uploads/2025/10/image00005-1-scaled.jpeg
END:VEVENT
END:VCALENDAR