Personally affected by a Bethlem myopathy, he has been implicated in the French fundraising event Telethon since 1987 and volunteered for AFM-Telethon since its teenage. Alexandre was previously a member of the Board of Directors of the Institute for Stem cells research (I Stem, Evry, France. From 2005 to 2017) and AFM-Telethon (Evry, France. From 2010 to 2017).
PhD in molecular and cellular biology by training, Alexandre has been working on neuromuscular junction defects and Emery Dreifuss muscular dystrophy in France and USA. He led a research group in Lyon for 8 years before becoming Scientific International Scientific Networks manager for AFM Telethon in 2018. He is an elected member of the Board of Directors of EURORDIS since May 2018 and is now implicated in several international networks and consortia such as Chair of the European NeuroMuscular Center (ENMC), a patient representative in the ERN EURO-NMD, AFM-Telethon representative in the European Joint Program on Rare Diseases (EJP-RD) and the International Rare Diseases Research Consortium (IRDiRC).