Daria Julkowska has a PhD in molecular biology and pursued her scientific vocation by post-doctoral experience in cellular biology, at Institut Pasteur, Paris and extensive training in communication and European Union counselling. She also holds MSc in Management of Research from the University of Paris Dauphine. She is the Scientific Coordinator of the European Joint Programme on Rare Diseases which brings together over 130 institutions representing different types of stakeholders (researchers, funders, clinicians & patients) from 35 countries from Europe and beyond and is also responsible for the coordination of the IRDiRC Scientific Secretariat. She is involved in the rare diseases field since 2010. She developed and put into action a set of collaborations facilitating research, including partnerships with European Research Infrastructures and Patients’ Organisations. She has extensive knowledge and understanding of European funding schemes and programmes and serves as the chair of the Expert Group on support for the strategic coordinating process for European partnerships of the European Commission. In 2020 she received EURORDIS Black Pearls Award for European Rare Diseases Leadership.