Hugh set up the EHE Rare Cancer Charity UK (EHERCC) in 2015 as his wife has Epithelioid Haemangioendothelioma (EHE), an ultra-rare sarcoma. The charity has raised over £1.25m since inception and has/is funding EHE research in Europe, the US and the UK, together with EHE-focused foundations in the US, Australia, Italy, and Canada. The charity has also funded the setting up the UK EHE National Biobank, and is helping to fund both a major EHE observational study and an EHE prospective registry across Europe, both managed out of Istituto Nazionale dei Tumori in Milan, Italy. The EHERCC is also part of the working group seeking approval for a label extension for the drug sirolimus for the treatment of EHE. Hugh is married with three children and a labradoodle called Lincoln.
