Rare Diseases Archives

News Patients Rare Diseases

University College London publishes iDR24 conference report

The UCL Translational Research Office led a UCL academic delegation to join the first international…

admin27 March 2024

Funders News Patients Rare Diseases Resources

Spanish newspaper El País attends iDR24 and publishes article on untapped potential of drug repurposing

Exciting insights from #iDR24! Oriol Güell from El País explores the enormous potential of drug…

admin11 March 2024

Rare Diseases

Rick Thompson on involving patients directly in creating impactful medicines

Why is it that in drug development, the needs and preferences of those who are…

Piret Baur8 September 2023

Rare Diseases

EVE SCOTT: RARE DISEASE DAY, A PATIENT-LED COMMUNITY

Please tell us a bit about yourself. I joined Beacon in October 2022 as Senior…

Ivette Corominas27 February 2023

Rare Diseases

CLAUDIA FUCHS: RARE DISEASE DAY IS A GLOBAL VOICE

Please tell us a bit about yourself. I joined EURORDIS in September 2022 as part…

Ivette Corominas22 February 2023

Rare Diseases

RICK THOMPSON: RARE DISEASE DAY SHOWS A DETERMINED COMMUNITY

Please tell us a bit about yourself. I’m the CEO of Beacon, formerly an evolutionary…

Ivette Corominas15 February 2023

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