Daria Julkowska has a PhD in molecular biology and pursued her scientific vocation by the post-doctoral experience in cellular biology, at Institut Pasteur, Paris and extensive training in communication and European Union counselling. She also holds MSc in Management of Research from the University of Paris Dauphine. She coordinated the European Joint Programme on Rare Diseases and is currently the scientific coordinator of ERDERA rare diseases partnership that brings together over 180 institutions representing different type of stakeholders (researchers, funders, clinicians, industry & patients) from 37 countries from Europe and beyond. She is involved in the rare diseases field since 2010. She developed and put into action a set of collaborations facilitating research, including the partnerships with European Research Infrastructures, Patients’ Organizations and industry. She has an extensive knowledge and understanding of European funding schemes and programmes and served as the chair of the Expert Group on support for the strategic coordinating process for European partnerships of the European Commission.In 2020 she received EURORDIS Black Pearls Award for the European Rare Diseases Leadership. In 2024 she obtained the title of “Remarkable Pole” in France, and Prix INSERM in the category of Research Support for her achievements and continuous support of research in the rare diseases field.
